When Elsa was first born and we found out about her vision, the Internet became a really important tool to learn about her diagnosis.
There were complicated genetic research websites that overwhelmed me with long explanations.
There were medical websites and blind education websites that provided a handle on the new terminology that was flooding our conversations.
There were resources all over the world wide web that related to our baby's conditions.
But the websites that have given me more hope than anything are blogs by
people in similar situations telling their stories.
Because a diagnosis feels heavy.
It is scary.
It makes you feel like you are separate from the normal world.
It gives you a unique view and sometimes that different outlook feels lonely.
So it has been really encouraging to meet some lovely families traveling the same road.
Here are just a few that I follow:
All amazing kids with amazing families!!